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A. Goal Chromosome Help-Station
(flyer in pdf)
- The Chromosome Help-Station aims to promote points of contacts in Europe where people with
rare chromosome disorders can turn to for support and advise. These contact
centres can be best set up as a cooperation between researchers,
medical staff, persons involved and other people who are working on
chromosome disorders.
- In addition the Chromosome Help-Station aims to promote practical support to
families with rare chromosome disorders and their organisations by the
following means:
- promotion and look after the interests of people with rare chromosome
disorders
- support
- advice
- the transfer of possibilities through this website
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B. Method of the Chromosome Help-Station
The Chromosome Help-Station wants to achieve its aims by:
- offering a platform for families with rare chromosome disorders
- links at the website, hints, help with searching for
information at the Internet
- giving advice for starting (European) networks for people with rare
chromosome-disorders
- offering practical support in organisation, publicity and other facilities
- maintaining contact with groups with similar goals
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