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The virtual network Eurochromnet wishes to achieve:
(page 15 United report)
- Enhanced awareness for rare chromosome disorders in the public,
political and scientifical arenas.
- Stimulation of the discussion on setting up national teams or expertise
centres for rare chromosome disorders. This should be dealt with at a
national level. Eurochromnet can serve as a platform to exchange experiences
and ideas in the various countries.
- Start of a virtual working group which will initiate discussions about the
possibility of establishing a European support team or expert group on rare
chromosome disorders.
- Receiving advice and support for this initiative from organisations like
Eurordis,
VSOP and ECARUCA.
- Spread of information about progress, issues and initiatives concerning rare
chromosome disorders and consulting Eurochromnet partners on these issues.
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