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The Chromosome Help-Station was founded March 21, 2002 in The
Netherlands by Annet van Betuw. She is founder and president (until March 2007) of the European
Chromosome 11q Network. Read the article
in the Eurodis Newsletter, March 2005.
She is also co-initiator of Zeldzaam,
which is the Dutch network of parents with children with rare chromosome
disorders and is an experienced project co-ordinator and manager. She left her job
to set up this Help-Station in order to
promote the interest of people with rare disorders. In January 2004 she
published "European Rare Chromosomes United; a European orientation on
people involved'. This lead to the start of Eurochromnet.
Other initiatives from Annet van Betuw (links in Dutch):
- Van Betuw Advies,
2004, Help-Station for Dutch groups for rare diseases and disorders.
(Help-Station voor Nederlandse groepen voor zeldzame aandoeningen)
(website opgeheven december 2006)
- Weblog Zeldzaam,
2005 (opgeheven december 2006)
-
 GelderlandVacatures.nl,
1 November 2005
The website is a very useful
instrument to promote interaction between people involved with rare chromosome
disorders. You can give your ideas, suggestions or other reactions by sending a
mail.
Chromosome Help-Station
Else
Mauhsstraat 7
6708 NJ Wageningen
Netherlands
tel. 0031 - 317 42 86 54/ fax. 0031 - 317 42
96 80
Reg.
Kamer van Koophandel Centraal Gelderland, Nl. nr. 09127079
Bank account: Postbank 9311090, swiftcode INGBNL2A
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