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Welcome to the Chromosome Help-Station!
for people with rare chromosome disorders

The purpose of this site is
to support and advise people with rare chromosome disorders, 
their families and organisations.

EUROCHROMNET


MEET EUROPEAN NETWORKS FOR RARE CHROMOSOME DISORDERS!!

MINUTES MEETING JUNE 2007
Eurochromnet Newsletter 10 - November-December 2007

 

What is a rare chromosome disorder? What does it mean if you have this disorder? Where can I find information about it? Are there other people who have this problem...? People who have to deal with a rare chromosome disorder find themselves in an unknown, new and lonely world. Information is seldom found and doctors are usually not able to help. Other people with the same experience as you have, do not seem to be there.  

This website is meant as support and advice for families with rare chromosome disorders. You will not find medical information -  that is what the medical profession is for - but you will find contacts, hints, links to specific and general chromosome groups and help in your search for information via Eurochromnet. It will also help you to meet other people who find themselves in the same situation. 

If you have questions or comments, please get in contact. But you also first can have a look at the Frequently Asked Questions (FAQ's).



This website started April 06, 2002 by the Chromosome Help-Station
Update: 30-03-2008