What is a rare chromosome
disorder? What does it mean if you have this disorder? Where can I find information about it? Are there other people who have this problem...?
People who have to deal with a rare chromosome disorder find themselves in an unknown, new and lonely world. Information is seldom found and
doctors are usually not able to help. Other people with the same
experience as you have, do not seem to be there.
This website is
meant as support and advice for families with rare chromosome disorders.
You will not find medical information - that is what the medical
profession is for - but you will find contacts, hints, links to
specific and
general chromosome groups and help in your search for information
via Eurochromnet. It will also help you to meet other people who find
themselves in the same situation.
If you have questions or comments, please get in
contact. But you also first can have
a look at the Frequently Asked Questions (FAQ's).
